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Journal of Transcultural Nursing
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Tenerlos En La Casa: The Material World and Craft of Family Caregiving for Relatives With Dementia

Carmen De La Cuesta, PhD, MSc, RN

Universidad de Antioquia at Medellin, Colombia and University of Alicante, Spain

Margarete Sandelowski, PhD, RN, FAAN

University of North Carolina at Chapel Hill

The environment has been found to be critical to the well-being of patients with dementia. The purpose of this study was to describe strategies Colombian caregivers used in the home to manage the care of relatives with dementia. Grounded theory techniques were used. Interviews were conducted in Medellín, Colombia, with 18 primary caregivers and 2 health care professionals. Participant observations were conducted in caregivers’ support groups and homes. Family caregivers rebuilt the environment as the disease progressed to accommodate caregiving and preserve family life. Caring for a relative with dementia is a craft that transforms the material world in which patient and caregiver live. The findings show the value of place-sensitive approaches to the study and practice of caregiving.

Key Words: Colombians • dementia • family care • grounded theory • physical environment • qualitative research

Journal of Transcultural Nursing, Vol. 16, No. 3, 218-225 (2005)
DOI: 10.1177/1043659605274979
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