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When Family Means More (or Less) Than Genetics: The Intersection of Culture, Family, and Genomics
Barbara Burns McGrath, PhD, RN*
and
Karen L. Edwards, PhD
University of Washington
* To whom correspondence should be addressed. E-mail: bbmcgrat{at}u.washington.edu.
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Abstract |
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There is renewed interest in the use of family history to predict individual disease susceptibility, and as a result, standardized online family history tools are being developed and marketed as a "new genetic test." It is not known how cultural variations in definitions of family influence collection of these data or what is the best format to use. This is significant given that the populations who carry the greatest burden of the target diseases have not been considered in efforts to test these tools. A qualitative study with a convenience sample of 19 Japanese Americans and Samoan Americans, two groups at high risk for type 2 diabetes, was conducted to explore the process of collecting family history. A particularly strong finding was the high degree of acceptance experienced by the participants with the process and their pride in visualizing their family graphically displayed in pedigrees. It was also found that Samoans included those linked by nonbiological ties in their families, which reflects their cultural practices. Further research is needed to assess the most effective and efficient way to gather family history given the complexities surrounding the deceptively simple concept of family.
First published on April 27, 2009, doi:10.1177/1043659609334931
Journal of Transcultural Nursing 2009;20:270.
A more recent version of this article appeared on July 1, 2009
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